Austin girl sings at Carnegie Hall seven years after stroke

How do you get to Carnegie Hall?

For more than 40 kids from Austin, it’s a journey that started with lessons at Orpheus Academy of Music and included lining up to get one of the slots in Orpheus’ first Carnegie Hall concert. The classical music school celebrated its 15th anniversary in a big way with this concert last week at the famed New York City venue.

Klondike Steadman, director of musical arts at Orpheus, said the music school allowed students to secure their spots by registering in person at 8 a.m. on a Saturday months ago. People started lining up at 10 p.m. the night before.

“What we go for is, how dedicated will you be?” Steadman says of the way students got picked for the concert.

The Carnegie Hall performance was extra special for 12-year-old Casey Irwin, who sang “My Funny Valentine,” and her mom, Julie.

Casey began voice lessons when she was 7 as a way to help her talk again after she had a stroke when she was 5.

“She couldn’t talk at all,” Julie Irwin says of her daughter when she first had the stroke. “She couldn’t read, she couldn’t make a word.”

Yet at Casey’s first singing lesson, the teacher told her to take a pencil, read the lyrics and make notes in the sheet music.

Julie Irwin says she didn’t think Casey could do it, that she wanted to jump in and try to explain the limitations Casey faced. But she didn’t. “The teacher was nonplussed by it,” Julie Irwin says of the stroke.

Irwin walked away and let the lesson happen, and Casey, who has lasting damage to her right hand from the stroke and had to learn how to write with her left, sat down and made notes on the sheet music.

“She was so motivated to do it,” Julie Irwin says.

Casey’s musical ability was part of her even before the stroke, her mom says. As a preschooler, she had a male music teacher, and she would sing exactly an octave up from what he was singing. That’s rare, Steadman says.

Everyone had told Irwin that some kind of music would be helpful for Casey to regain language. Music and singing use a different part of Casey’s brain, and singing could form the bridge between.

“Music really helped me,” Casey says. She was motivated to learn how to read by reading the lyrics.

“It helped her healing,” Julie Irwin says.

The stroke occurred on July 11, 2011, the summer after Casey’s kindergarten year. She was in the pool at Reed Park.

Luckily, Julie Irwin was right there when Casey came up out of the water. Casey couldn’t walk or talk. “Her whole face was drooping,” Julie Irwin says. Casey started crying, but she couldn’t make a sound.

“I knew it was extremely serious,” Irwin says.

Irwin was screaming for people around her to call 911.

Casey says the stroke didn’t really hurt, but she remembers thinking, “I’m going to die,” she says. “It was very scary, but then my mom was right there, and I knew I was going to be OK.”

They went by ambulance to Dell Children’s Medical Center of Central Texas and Casey stopped breathing along the way. Doctors got Casey stabilized, and the recovery began.

Casey couldn’t make any sounds at first, but then a week later, she made a grunt while playing with a balloon with her grandparents. Then, with more therapy and time, she learned how to point with her left hand to get what she wanted. In another month, she could say 10 to 15 words.

Julie Irwin likened it to her daughter suddenly being an infant again and learning to talk: first grunts and babble, then pointing, then a few words.

Casey was in therapy constantly, first at Dell Children’s, then at a specialized rehabilitation center in Dallas, then outpatient therapy back home.

She relearned how to walk, first with six people helping her, then on her own with a specialized electronic boot to stimulate the nerves.

Her speech began to come along, but she would mix up words or be searching for a word, which still sometimes happens. She’ll be talking about Niagara Falls when she means Neanderthals.

And she still has weakness in her right hand, which she holds in a fist close to her chest.

“Doctors said it was going to get better,” Casey says of her hand.

“They don’t really know,” Julie Irwin says.

In addition to taking voice lessons and music theory at Orpheus, Casey has now started taking piano. Her teacher gives her music that is written for or arranged for people with the use of only one hand. Again, like that first voice lesson, Julie Irwin walked out of the room and let the lesson happen. Casey was able to play with her teacher. “It’s helpful to have a place that didn’t make (the effects of her stroke) a thing,” Julie Irwin says. “They aimed a little higher.”

Steadman says he has learned a lot from his wife, Wendy, who also is a music teacher and who got her start teaching adults with disabilities. Now 50 percent of his wife’s students would be considered on the autism spectrum or having another disability. “Everybody is special needs,” Steadman says. “Every single student has areas where they excel and areas where they need to learn,” he says.

Casey is now playing Bach on the piano, about a year after starting lessons, and it has helped strengthen her right hand.

“It shows what I can do in a different way,” she says. “I tried it out, and I really liked it.”

Casey was a bit nervous to play at Carnegie Hall.

“Am I sure I want to do this?” she had been asking herself.

Performing regularly is part of Orpheus’ curriculum. Students play for one another as part of music theory class and in regular recitals. It’s all about confronting stage fright and, as Steadman says, being a part of something bigger than yourself.

“Together we inspire,” he says of the school’s philosophy. “Casey’s been such a big part of it.”

Reader Comments ...

Next Up in Lifestyle

Child obese? It could be the mom’s fault, study says
Child obese? It could be the mom’s fault, study says

Moms, when it comes to your child’s weight, you matter. A new study in the British Medical Journal confirms this. The study looked at more than 24,000 children of more than 16,000 nurses enrolled in the Nurses Health Study II in the 1990s. The researchers specifically looked at children who were not obese before age 9...
12 fascinating Texans and where to find their graves
12 fascinating Texans and where to find their graves

As one is often reminded, Texas is a really big place. As a result, it has generated a whole mess of incredibly interesting people. A lot of them are no longer alive. Here is where to find the graves of 12 fascinating Texans from throughout history. Bigger than life for virtually his entire existence, Crockett was a Tennessee congressman, a near-mythical...
How to deal with your picky eater
How to deal with your picky eater

Tired of dealing with kids who have demanding palates? Instead of indulging their often unhealthy demands, Atlanta-based Chef Ahki offers a few table-tested ideas to satisfy finicky eaters. "Sometimes our kids will try to see if they can get away with eating foods that they know you don't approve of," said Chef Ahki, who's also a mother...
What to ask at Meet the Teacher event
What to ask at Meet the Teacher event

This week, many elementary schools have Meet the Teacher events. The folks at  Edutopia website have compiled a list of 19 meaningful questions to ask your child’s teacher for a productive conversation during meet-the-teacher night. BACK TO SCHOOL: See our guide for tips, checklists and resources for parents. Sixth...
How to take a great first day of school photo
How to take a great first day of school photo

The first day of school is just around the corner. Wednesday  kids in the Bastrop, Lake Travis and a few other districts head back. Thursday, it’s Round Rock, Leander, Georgetown and Pflugerville. Austin heads back Aug. 20. RELATED: Do you know when your school starts?  We want to see your first day of school...
More Stories